Musings from an Orthodox Jewish work at home mom of twins with Autism Spectrum Disorders.

Bigotry

My husband works in a place without a lot of white people— he loves his work and his colleagues.

There is a person in our community who tells my husband that he’s working with the “spics and spades”.  This is a guy who also uses the terms “nigger” and “shvartze” and “goy”.

The irony is that the “spics and spades” this guy is minimizing are the same people who would NEVER talk about the Jews as “kikes” or similar. In fact they ask my husband respectful questions daily about observant Judaism— they care and are interested in learning.

Bigotry is a real problem in the Orthodox Jewish community and I’m more and more disillusioned by the day.  People simply tell me not to judge Judaism by the Jews and believe me, I’m trying.

But as a friend of mine posted on facebook today….

I do not care about your politics, your religion, your race, your financial status, your gender or your love life.
I care about the way you treat others.

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After a zillion really terrible IEP meetings as my son was getting kicked out of public school a couple of years ago, I’ve been content with his new school— not THRILLED mind you, but content. A lot less aggression as he has very few students in his class and there are maybe 40 students in the whole school with an amazing student:staff ratio. Everyone is trained in TCI, everyone knows what to do in case of meltdown, and there are plans for dealing with aggression stemming from autism. But I’ve had two problems with this school— the lack of gifted services, and the gym curriculum or lack thereof. As far as the latter goes, there is NO adapted phys ed and therefore there are no gross motor skills on the IEPs for this school’s students. It doesn’t matter that he’s always had gross motor goals and adapted phys ed at his previous school. Furthermore, gym class is simply run by the intervention specialists— they do kickball, dodgeball, defend the castle and that’s about it—- VERY different from the diverse phys ed curriculum of public school. I asked about how we can get one of the public school adapted phys ed teachers down to his school if not to see him once a week and get gross motor goals on the IEP, then at least evaluate him and tell me how to focus his gross motor for the next while because I’m no phys ed teacher and there is very little this boy needs more than gross motor work. Last year I got a lukewarm apology— sorry, that’s not done, no gross motor goals on IEP, oh well. This year…… success! Fred’s first gross motor eval at this school is coming up and it looks like he’ll be able to have one of the adapted phys ed teachers (ironically… his twin sister’s!) come down to his school to work with him! All I had to do was ask nicely two years in a row. More info about the gifted stuff to come— basically they HAD been individualizing his math and science work but they had reason to stop doing that. In my next post I’ll tell you what’s up there.

Hamster Butts

no reason, just because they’re cute and funny.  I need laughter in my life.

https://www.sadanduseless.com/hamster-butts-gallery/

Always a crazy balance. Do I bring them places where we’re likely to have a severe double scream fest? Or do I keep them home where we’re likely to have a severe double scream fest anyway because a bored Wilma just pushes all of Fred’s buttons?

The things said about my children:

“maybe you should have left him at home”.
“why does she bring them here if she knows they can’t handle it?”
“they should be living in residential— why does she keep them at home?”
“BOTH her kids act like this—- must be the parenting skills”

and on the other hand…

“they’re scapegoating their kids again— they should have come and brought them (even though there will be hundreds of people)”
“your kids can totally handle this (glad you know them better than we do!)”
“my granddaughter would NEVER behave like THAT!”
“is your son still a retard?”
“why does your son act like a banshee?”

If we don’t come to something, please understand. And if we DO come and something happens, please understand. Sometimes I’m willing to try and sometimes I’m not. For instance if I know certain people will be there and I know it will be a trigger, we’ll stay home, thanks.

 

 

https://www.pbs.org/newshour/nation/a-child-with-autism-cant-engage-with-the-world-if-kept-at-home

#youmightbeanautismparentif you ask your son with a genius level IQ to put on his pajamas. Because you’re downstairs chatting with your dinner guest instead of upstairs telling him what to do next he thinks that means bring the jammies downstairs to put them on. We sent him back up before it happened but…. I know *MY* IQ went down a few points.

Vent I posted on facebook:

 

Yes, I post the funny stuff and the lighthearted stuff and the stuff that (hopefully) will mostly make you smile….. about my children. I don’t post often about her colon diagnoses and her nightly medical treatments or the fact that he’s almost 12 and still biting strangers (but thankfully, more often, just mom and dad, the fact that he got kicked out of public school and goes to a special behavior program, or the fact that she’s only successful in school because of highly trained intervention specialists that know what to do when a middle school student starts crying under a desk to escape a task……. I TRY to keep facebook posts lighthearted and fun and that’s why I post a lot of funny things my kids say and I don’t post a lot about the bruises I’ve gotten from my kids or the permanent damage done to one of my fingers or the amount of intense screaming that happens in this house during ABA hours.

But if you for a moment think that means that I should be able to plop my kids overnight with a babysitter and go wherever, or that I should be able to take my kids WITH me and go somewhere they’ve never been…..no, I do not travel without them. And no, I do not travel with them. You can call it scapegoating if you want, but until you learn all you need to know to do her colon flush and all you need to know to response block his attacks, AND offer to babysit even for one night, this is life over here. If you’re horribly offended that we don’t come to see you, you’re welcome to unfriend us, facebook wise and otherwise. Our true friends GET IT.

Just saving funny stuff.  🙂

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