I was busy
obsessing over thinking about the fact that my kids will have a two week break. This Friday will be their last day of school until January 10th. I physically and mentally CANNOT take them by myself most places (we have a system down pat for walmart and target— my kids LOVE CARTS). The library? Nope. Playground? Nope. Restaurants? SOMETIMES but I’d better be prepared for a mini meltdown. (If you’ve ever seen us at the library or the playground, you’ve seen a MEGA meltdown. A restaurant is usually a mini meltdown which is the worst meltdown ever for a neurotypical kid— for my kids, it’s a regular day.) So I CAN take them to restaurants, though I don’t love it.
My husband has to work. I have to work too, but hey, as long as I can make a full time income after the kiddos go to bed, then my daytime has to be the autism battle zone. Forget the laundry and the cooking.
SSI denied us so we don’t have play money to get respite. Respite denied us “extra” funds even though in the board of developmental disabilities paperwork are all the reports from our early childhood intervention specialist stating that taking them places by myself is my biggest problem. I have ZERO issues taking either kid with me anywhere— yes, there are meltdowns, but no safety issues and nobody except me gets bitten— I use my strategies and I can get out the door without anyone getting hurt. But put me with both kids and as soon as Wilma decides to flop and refuse to move, Fred turns into a tazmanian devil and bites anyone near him—- I don’t have enough hands to keep Wilma from deciding to run off while I pry Fred off an unsuspecting library patron. I need both of my hands on both children at that moment. I’m actually the only person I know who took a rep from the board of developmental disabilities to the playground with me, and Fred’s special ed teacher to the library with me— SO THAT we could come up with strategies SO THAT eventually I can go places without hiring a babysitter for one or both of my children.
Other families during winter break travel or go to museums or special events or parties. Yeah, we’ll be home. Want to come over for a play date?
This post sums it up SO nicely— THIS is why you don’t see me and my children out and about so often.