Musings from an Orthodox Jewish work at home mom of twins with Autism Spectrum Disorders.

Manometry

Wilma’s manometry procedure will be Monday. Not surgery perse, but it might be kind of awful since it will be painful and they’re not putting her under. Just got a call asking us to participate in a study about how young children react to this procedure– that’s not a good sign that Monday will be a piece of cake for her. I wish I didn’t have to torture her with all this craziness.

The GI doc ordered a third cleanout and a third xray—-  the third xray STILL had plenty of stool in it.  But before the nurse could tell me to do another clean out (each clean out requires 40 + pullups, 4 days stuck at home going nowhere (so sick of her missing school), and an autistic child who is very mad at the whole situation)  — I said—- we’re NOT DOING ANOTHER CLEANOUT!  Multiple cleanouts which make her poop up to 17 times a day don’t clean her out—- they don’t make normal poop— they just make the frequency even greater.

Please let the manometry tell us SOMETHING about what she can or can’t feel!

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Comments on: "Manometry" (2)

  1. Another post infertility mom said:

    Thinking about you and hope all is well.

  2. thanks so much- I’ve been incredibly busy— we got a new car this week. Posted an update.

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