Musings from an Orthodox Jewish mom of twins with Autism Spectrum Disorders, ADHD, and one twin has encopresis, megacolon, and an ileostomy. I'm tired. :)

Manometry

Wilma’s manometry procedure will be Monday. Not surgery perse, but it might be kind of awful since it will be painful and they’re not putting her under. Just got a call asking us to participate in a study about how young children react to this procedure– that’s not a good sign that Monday will be a piece of cake for her. I wish I didn’t have to torture her with all this craziness.

The GI doc ordered a third cleanout and a third xray—-  the third xray STILL had plenty of stool in it.  But before the nurse could tell me to do another clean out (each clean out requires 40 + pullups, 4 days stuck at home going nowhere (so sick of her missing school), and an autistic child who is very mad at the whole situation)  — I said—- we’re NOT DOING ANOTHER CLEANOUT!  Multiple cleanouts which make her poop up to 17 times a day don’t clean her out—- they don’t make normal poop— they just make the frequency even greater.

Please let the manometry tell us SOMETHING about what she can or can’t feel!

Comments on: "Manometry" (2)

  1. Another post infertility mom said:

    Thinking about you and hope all is well.

  2. thanks so much- I’ve been incredibly busy— we got a new car this week. Posted an update.

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