Musings from an Orthodox Jewish work at home mom of twins with Autism Spectrum Disorders.

The manometry was fun!  As much fun as sticking wires and balloons up your child’s butt COULD be…..

For most kids, it’s painful or irritating or annoying.  For Wilma?  She didn’t feel a darn thing.  The computer showed that her rectum and shpincter work just fine— but they filled the balloon to the extent that most kids desperately have to go to the bathroom and she didn’t feel any difference.

So we know that it’s not her hypotonia—- it could be a nerve ending issue.  It’s not just the autism or just the adhd. It’s not Hirschsprung’s disease.

So now we do further testing— is it a very mild spina bifida?  Is it a very mild cerebral palsy?  WHY can’t a six year old, whose muscles WORK, toilet train for #2?  The mystery continues.

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