Fred now has new meds on board— no more seroquel and we’re weaning COMPLETELY off the risperdal. His new med? Depakote. No behavior changes yet (not good ones at least) but…… NO MORE ABSENCE SEIZURES! I was on my way to the EEG merry go round but depakote saved us from THAT fun rabbit hole. They just….. went away! Ok so he still screams, bites, kicks, hits, screams, and …. yeah he SCREAMS…. but he’s usually in our world and not completely in la la land! Those seizures were scarier and scarier as he was getting older.
Fred now has a new school on board— basically, he’s been kicked out of public school. More suspensions since the last time I wrote. More IEP meetings. More frustration. More “I want to AVOID due process” in my nicely worded letters. He’s now in a small school in a small class….. which SPECIFICALLY works with kids with behavior issues. It’s not a permanent fix. The district likely won’t pay for this forever. But for at least the next year, school is going to be a-ok.
Fred now has new therapists on board. He got his waiver in July so this week we finally dropped his old ABA company for his sister’s company who hired a therapist for him who ALREADY KNOWS AND LOVES HIM! Hoooooray! Trying to get up to 8 hours a week. Currently at 4, but better than nothing!
Wilma has her cecostomy surgery scheduled. MOST days she isn’t crying from the anxiety of it and sometimes she’s even excited about an upcoming hospital stay.
Wish me luck— two weeks of winter break now, otherwise known as “can’t these people get along for 6 minutes? And when the heck am I supposed to get anything done?”