Musings from an Orthodox Jewish work at home mom of twins with Autism Spectrum Disorders.

Ch-Ch-Changes

Fred now has new meds on board— no more seroquel and we’re weaning COMPLETELY off the risperdal.  His new med?  Depakote.  No behavior changes yet (not good ones at least) but…… NO MORE ABSENCE SEIZURES!  I was on my way to the EEG merry go round but depakote saved us from THAT fun rabbit hole.  They just….. went away!  Ok so he still screams, bites, kicks, hits, screams, and …. yeah he SCREAMS…. but he’s usually in our world and not completely in la la land!  Those seizures were scarier and scarier as he was getting older.

Fred now has a new school on board— basically, he’s been kicked out of public school.  More suspensions since the last time I wrote.  More IEP meetings.  More frustration.  More “I want to AVOID due process” in my nicely worded letters.  He’s now in a small school in a small class….. which SPECIFICALLY works with kids with behavior issues.  It’s not a permanent fix.  The district likely won’t pay for this forever.  But for at least the next year, school is going to be a-ok.

Fred now has new therapists on board.  He got his waiver in July so this week we finally dropped his old ABA company for his sister’s company who hired a therapist for him who ALREADY KNOWS AND LOVES HIM!  Hoooooray!  Trying to get up to 8 hours a week.  Currently at 4, but better than nothing!

Wilma has her cecostomy surgery scheduled.  MOST days she isn’t crying from the anxiety of it and sometimes she’s even excited about an upcoming hospital stay.

Wish me luck— two weeks of winter break now, otherwise known as “can’t these people get along for 6 minutes?  And when the heck am I supposed to get anything done?”

 

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Comments on: "Ch-Ch-Changes" (2)

  1. Depakote is amazing, but keep an eye on his weight. It increases appetite and slows down metabolism at the same time. If he’s taking ADD meds, it will help balance out the appetite suppression from that, so there is an upside.

    You’re doing a great job, hang in there! I’ll be davening that Wilma has a good outcome and a speedy recovery.

  2. we’ve never had any success with add/adhd meds for him and in fact he’s officially “allergic” to one of them. Since his autism far exceeds his adhd, I don’t bother medicating the adhd. Watching his weight is where we’ve been for ages— we’re weaning off risperdal. 🙂

    Meanwhile, Wilma’s adhd far exceeds her autism, so I refuse to take her OFF adhd meds. 🙂

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