Musings from an Orthodox Jewish mom of twins with Autism Spectrum Disorders, ADHD, and one twin has encopresis, megacolon, and a cecostomy. I'm tired. :)

Archive for November, 2019

SO Inappropriate

Fred tried to lay on top of me lining his crotch up with mine—- AGAIN. Then when we told him he’s not allowed on my bed for two weeks because he is being inappropriate he went into multi bite mode…. AGAIN. So of course then my husband yelled out….. And you want to have a Bar Mitzvah kiddush??  (He yelled at ME—– Fred couldn’t care less whether we celebrate his becoming a Bar Mitzvah).

PS—- one of our community bullies ALWAYS notices EVERY bite mark my husband sports on his arms.  My husband is hesitant to roll his sleeves up at Daf Yomi because the jerk asks with intense snark…. “oh so you got a dog?”.  “DISCIPLINE!  You must POTCH your children!”  Yes, because abusing them will teach them not to abuse us.  Great plan.

 

 

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Wilma Isn’t Pregnant

Wilma had a doctor appointment and as a requirement for one of her medications they needed to do a pregnancy test. So my autistic 12 year old was YELLING “I will NOT pee in a cup! I AM NOT PREGNANT!” at the pediatrician’s office. She got permission not to pee in a cup (I played the autism card and the there is just NO WAY card) and she calmed down. But then she wrote all over the butcher paper on the exam table…… “I am not pregnant. I will not pee in a cup. Peeing in a cup is gross.” Life is always interesting with these two.

Look What Came Out Of Me!

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The surgeon called yesterday and bumped my stent removal from tomorrow to yesterday! One was way down low so all the pain right there makes sense. Post procedure pain last night but for the first time in 5 weeks I can walk normally…. no stent pain!!  Today I did everything I’ve been WANTING to do….. tidy up, put away laundry, tidy up…..  ok, it wasn’t a fun day but my goodness I feel so much better physically and mentally!

The surgery to insert these puppies was at the end of September.  The surgery to take out the kidney stones and put these puppies back in was at the end of October. This health nightmare is now over.  Ok, aside from a 24 hour urine collection, ultrasound, xray, and follow up with the surgeon all in a month.  🙂

The stones were calcium oxalate so no more spinach or almonds for me.  Gotta be more careful with my diet.

Organized Bullying

I’m beginning to think that the only thing organized in some (not all!) Orthodox Jewish communities is the bullying, both of children and of adults.

It’s a small group of teens and adults who continue to bully my husband, but boy are they loud. And constant.  And causing us to argue about moving.  ALL.  THE.  TIME.  Our son is supposed to celebrate becoming a Bar Mitzvah in two months.  We’ve done nothing.  We absolutely cannot agree.  Should he be called to the Torah at all?  What will happen?  Should we have a kiddush?  Who might show up?  Sadly, we may just buy him some special treats and congratulate him and let the community simcha part just……  blah.

Tonight, some bochurim called a treif restaurant FROM the synagogue, ordered treif pizza to be sent to our address (lovely, they’ve got our address) and gave the name as “the retard manager who attended Yeshivas I once ate pork”.  (they call my husband retard manager because he used to be a para in a couple of the Jewish schools working one on one with students with special needs.  The organization that hired him and the schools could never agree on what his job actually entailed, and the students looked at him as a babysitter.  The schools didn’t care about the middos of their students, so years later these kids and their younger siblings are still calling my husband these horrible names.)  The Yeshiva—– well, we’re Baalei Teshuvah.  We catch flack for that too.  Apparently Yeshivas I Once Ate Pork is quite popular because I have a lot of BT friends, but I digress.

Where are these boys’ fathers?  Not at mincha or maariv with them supervising them, that’s for damn sure.  Where are the Rabbaim?  Well if the boys are from important families, families of Rabbanim or Rebbeim, or rich families……  my husband is always told to just “be mevater”.

 

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