Musings from an Orthodox Jewish work at home mom of twins with Autism Spectrum Disorders.

Archive for the ‘Second Grade’ Category

Hands To Self

oy vey.  EVERY day at home, Fred touches me inappropriately.  One breast, the other breast, both breasts.  I move his hands and say nothing.  I walk away and say nothing.  I tell him no.  I send him to another room.  I hope it’s a very long horrible phase that will end at some point.  How can a child who can do 9th grade math also be THIS inappropriate?  In my prayers EVERY DAY— please don’t touch your teachers or friends this way.  He has.  He did.  Up till now it was “just” his teachers.  Now he’s touching his female classmates’ breasts.  School is doing a social story and sending home a copy but I need more bright ideas……. I LOVE mainstreaming this child and I HATE mainstreaming this child.

Just Venting

Many years ago the pediatrician sent us to the psychiatrist.  The psychiatrist sent us to the wrap around center.  the wrap around center was awful so we begged to get into the developmental pediatrician.  She bumped one twin to the psychiatrist (a different one).  She referred both twins to the nutritionist.  Both twins lost weight.  Psychiatrist had Fred change meds and his blood sugar went up and BMI isn’t good.  Developmental ped keeps Wilma on a med that makes her gain weight and her weight increases greatly.  Her BMI is awful.  My husband is insulin dependent diabetic and I have hypoglycemia and had pretty intense insulin dependent gestational diabetes so….. She refers both twins to the endocrinologist.  Endocrinologist is doing A1C’s on both twins, sending both twins back to the nutritionist, and asking us to enroll in a weight loss program that asks us to come in at least weekly.  With 8 hours a week of ABA on one twin, speech therapy on both twins, 2 hours of homework per week per twin, and tutoring/ friendship circle/ other activities, I’m finally stepping off the treadmill and saying NO to the weight loss program.  Each developmental ped appointment takes two hours— this morning’s endocrinologist appointment took two hours—–  getting bloodwork from Fred requires an entire building to take a valium.  This morning’s double meltdown at the endo was because I wasn’t going to be able to get Wilma to school in time for the beginning of recess.  ALL of our appointments are within ONE hospital system (at a bunch of different campuses)——-  something has got to give.  DOCTORS:  STOP ASKING THE SAME QUESTIONS at every appointment.  Spend 15 minutes looking on the computer at the history from multitudes of other doctors— then bring us in, do some poking and prodding, and ask a few questions.  My kids are missing too much school and I’m missing far too many brain cells.

First Day of Second Grade Tomorrow

Most moms worry a bit about second grade starting— they worry about whether their kids have all their supplies, whether they’ll eat their lunch— whether they’ll like their new teachers.

Me?  I worry that my enco kid will poop at school.  We’d BEEN on a straight after dinner schedule for a while but over the past few days that’s gone out the window (perhaps since school is starting?).  I gave up on underpants here at home—-  my 7 year old pooped herself maybe 6 times yesterday (lost count) and 3-4 times today.  The once a day after dinner poop doesn’t concern me vis a vis school…. but this new schedule is worrisome.  She’ll have the same aide as last year who will help her change, force her to get the rest in the toilet, deal with the meltdown, etc….. but as years go by it’s more and more heartbreaking.  I hope I sent enough underpants changes.

I worry that my other kid will get enough bathroom reminders— if he’s not TOLD to pee, he’ll happily wet himself.  I worry that he’ll spend 95% of the day screaming his head off.  I worry that he’ll continue to ignore everyone at recess and count the woodchips or line up trash he finds on the ground.  I worry about meeting strange kids at the library again and again who tell me “oh, your son goes to ___ school.  He’s the one who screams all the time!”

Academics?  Not worried.  Social skills, behavior, and toileting?  Very worried.

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