Musings from an Orthodox Jewish mom of twins with Autism Spectrum Disorders, ADHD, and one twin has encopresis, megacolon, and a cecostomy. I'm tired. :)

Of my twins, Wilma is typically the “higher functioning” of the two, autism wise.  She’s the one who didn’t get kicked out of public school.  She’s the one who can have a conversation with you with relative ease even if she doesn’t look at you.  She’s the one who can generally run an errand or walk through the neighborhood without a horror show ALWAYS happening.  Her meltdowns are severe, but relatively rare these days.  Except….. at her own Bas Mitzvah party.

I planned a 5:00 pm to 7:00 pm dinner event in  a park, half a year after she turned 12, so that we could be outdoors with fresh air, with a playground to which my kids could escape (and all of their friends with special needs), and so that it could be informal (read:  budget of $500 and not a penny more).  I rented the covered picnic pavillion, paid for $200 worth of pizza, an $80 cake, bought $100 worth of sodas and papergoods, sent out the facebook invites and the actual written invites to the few facebook holdouts, and prayed.  I prayed a lot.  I had her write a speech.  It was short and sweet, much like Wilma herself.  *I* wrote a speech—- just a few “Wilma-isms” I’ve collected over the years.  I allowed her (and Fred) to wear whatever they wanted.

The first hour of the party was perfect.  Gorgeous weather, fun with friends, I gave my speech and my husband gave his.  Wilma didn’t want to give hers.  She pushed me and yelled.  I kept a smile on my face and offered to give it for her.  She refused.  A few minutes later she went to the bathroom.  I QUICKLY gave her speech while she was in the bathroom and told the 50 people present “shh don’t tell!”  She had no idea, so even that went off without a hitch.  Non Jewish public school friends were schmoozing with Jewish community friends—- beautiful (and so rare in our community!)

In my next post I’ll describe the second hour of the party.  It was a teeny bit different than the first part.  It’s 1:20 am now— have you noticed I haven’t been making the time to blog?  Life is busy.  This party happened a week ago already.  Suffice it to say—– I needed that week to recover.  More to come!

 

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Comments on: "It’s Her Party and She’ll Have An Autism Meltdown If She Wants To" (3)

  1. Silent admirer said:

    MAzel Tov! Check paragraph 3 … I think you meant to write Wilma. Glad it went well.

  2. THANK YOU! OOPS! Edited. Always worried I’ll put their real names on here by accident.

  3. Silent admirer said:

    No worries:)
    I won’t tell lol

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